Pulmonary Fibrosis…
it takes your breath away…
A Texas Non-Profit Organization
Senator Patty Murray’s Floor Statement in Congress Introducing S. 3703, the PFREA
POSTED: Sunday, August 15, 2010
Mr. President, I am pleased to introduce the Pulmonary Fibrosis Research Enhancement Act. Even though pulmonary
fibrosis, or PF, kills almost as many people as breast cancer every year, it has not received the attention it
deserves. &nbsbp;
Imagine being told by a doctor that you have a life-threatening disease with no known cure, no consistent standard
of care, and no reliable prognosis. Though environmental factors, including occupational exposure to pollutants,
are believed to play a role in its onset, PF has no strong demographic profile. In most cases, the doctor can’t
even tell you what has caused you to get sick. That is exactly the situation faced by the 48,000 people who are
diagnosed with PF every year in the United States.
Dr. Nancy Snyderman and NBC's Robert Bazell of NBC's TODAY Show diseases IPF in an interview with
California patient Bob O'Rourke, who suffers from the disease and will die from it unless he receives
a lung transplant in time.
Mike Blazer of Alabama and other patients need your support, get your shirt today. Watch
Mike's Interview
that aired on a local TV Station.
POSTED: Monday, February 1, 2010
The Coalition for Pulmonary Fibrosis, The Pulmonary Fibrosis Foundation and the Pulmonary Fibrosis
Association of Texas today announced the launch of a special, grassroots campaign to build increased
national awareness of Pulmonary Fibrosis (PF). "Blue Shirt Friday" is the first combined national
effort by the three nonprofit organizations that each focus on the fight for treatments and a cure
for the fatal lung disease that takes as many lives each year as breast cancer ...
Read the press release
3rd Annual Golf Tournament
POSTED: Monday, January 5, 2010
The Pulmonary Fibrosis Association of Texas, Inc. conducted its 3rd annual golf tournament on November 9,
2009 at the Walden on Lake Houston Country Club. The tournament was a fun and successful event for the
organization. A special thanks goes out to all of our sponsors.